At first, Kathy and Robert withheld the special details of the night from Robbie. But when the family — including Robbie’s 7-year-old sister, Allison — was on its way to Timberlake’s Hammerstein Ballroom show, Robbie’s mother told him he would be meeting the star. “I didn’t believe her,” Robbie said. “I thought we were just going to the concert.”

Another friend of Robert’s, who owns a limousine service, offered the Twibles a free ride into Manhattan. That afternoon, a 25-passenger limo pulled up in front of their home on Belmont Avenue. “It didn’t even fit down the block,” said Kathy, who teaches in the Great Neck School District.

When they arrived at the theater, they were escorted inside for the sound check. “Two minutes later, his personal assistant said, ‘You guys ready?’” Kathy recalled. “And we’re like, ‘For what?’ And out comes Justin Timberlake.

“I wasn’t ready,” she laughed.

Before singing his final song of the evening, Timberlake dedicated the show to Robbie. It was a life-changing experience, Robbie said. “There’s a lot of good,” he said. “If you believe, it will happen.”

Getting to meet the casts of “Jersey Boys” and “Beautiful” wasn’t too bad, either. Robbie has seen 25 Broadway shows, including “Jersey Boys” twice. His dream job, he said, is Broadway set designer.

He has now set his sights on one day meeting another idol, Ellen DeGeneres. “You’ve got to make that happen for me,” he pleaded with this Herald reporter.

And every time Robbie’s name appears in print — in the Daily News, the Queens Tribune or the Herald — so does the ungainly name of his disease, which is of the utmost importance, said his parents, in order to spread awareness of it.

There’s no known cure for epidermolysis bullosa, but doctors tell the Twibles that research is getting closer. “Unfortunately, we’ve been hearing that for 12 years,” said Robert. “It can’t come soon enough.”

Living with E.B.

Before W.T. Clarke, Robbie attended Meadowbrook Elementary. His parents rave about the East Meadow School District, which accommodates Robbie with a special aide and air-conditioned classrooms to keep him from becoming too itchy. He leaves each class a few minutes early to walk the hallways unimpeded.