The EPIC Family of Human Service Agencies, which includes the Epilepsy Foundation Long Island, hosted its annual Walk for Epilepsy at Eisenhower Park, drawing more than 1,000 participants in a show of solidarity for those living with the neurological condition. The event aimed to raise $126,000 — a figure symbolizing the statistic that one in 26 people will develop epilepsy in their lifetime — and has already generated nearly $95,000.
The walk emphasized the importance of education, advocacy and community for the more than 35,000 Long Islanders affected by epilepsy.
“Epilepsy affects so many lives — children, families and individuals across every community,” said Lisa Burch, president and chief executive of the EPIC Family of Human Service Agencies. “Through the Walk for Epilepsy, we are standing together to raise awareness, strengthen understanding and empower those living with epilepsy to live full and confident lives. The community’s generosity and energy make this event so meaningful year after year.”
The Walk for Epilepsy is part of a national effort to bring greater visibility to epilepsy, one of the most common yet misunderstood neurological disorders. About 3.4 million people in the United States — including 470,000 children — are living with epilepsy, which can affect every aspect of daily life. The annual walk helps increase awareness, reduce stigma and fund programs that provide education, support and advocacy to families across Long Island.
This year’s grand marshal was 16-year-old Kassandra Facey, honored for her advocacy and personal strength. Facey experienced her first tonic-clonic seizure at age 16, a life-changing moment that launched her into awareness efforts. Now an author and founder of Kassy’s Corner, she works to create a safe, inclusive space for people with epilepsy, special needs and their families to connect and support one another.
“Kassandra’s courage and dedication to helping others embody the spirit of what this event is all about,” said Irene Rodgers, chief development and engagement officer. “Her story reminds us that with understanding, compassion and community, no one has to face epilepsy alone.”
Participants at the walk wore custom team shirts honoring loved ones, while local sponsors provided refreshments and signage along the route. The event served as both a celebration of resilience and a call to continue supporting essential programs for the epilepsy community.
Funds raised through the walk support the Epilepsy Foundation Long Island’s programs, including Seizure Recognition and First Aid Certification Training, school in-service programs, community education, advocacy and monthly workshops, all offered free of charge.
The EPIC Family of Human Service Agencies includes three organizations that provide advocacy and healthcare resources for families across Long Island. EPIC Long Island operates a day habilitation program in East Meadow and 18 group homes in Nassau and Suffolk counties, providing clinical services for children and adults with developmental disabilities. Each residence is staffed by caregivers who support individuals with varying abilities and challenges.
The Epilepsy Foundation Long Island focuses on awareness, advocacy and resources for the 35,000 Long Islanders diagnosed with epilepsy, including community education in schools and healthcare settings and seizure first aid certification training.
The South Shore Guidance Center in Freeport, also part of the EPIC family, is an outpatient behavioral health clinic serving Long Islanders of all ages. Services include individual, group and family psychotherapy, substance use treatment, crisis stabilization and medication-assisted treatment.
