Supporters come out for Emma’s 5K Walk

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On Sunday, Oct. 24, Emma’s 5K Walk For a Cure took place on Long Beach Boardwalk. The fundraiser, to benefit the National Tay‐Sachs & Allied Diseases Association, began drew more than 100 people, with event organizers saying that the benefit was a big success.

Christine Hallahan, organizer of the event, decided to create her first walk in honor of her six-year old niece, Emma, who suffers from Tay-Sachs disease, a genetic neurological disorder. Hallahan committed herself to raising awareness and funds for the fatal disease, which can affect anyone. Hallahan said that the event was also meant to create awareness about the disease.

“Everyone should know about it,” said Hallahan. “Like any other disease, it’s definitely important to raise awareness.”

The minimum donation for the event was $10, and children under 12 were admitted for free. Donors received free T-shirts, and community service credit was awarded to student volunteers.

Donations were made via mail and through the event’s website. In total, close to $10,000 was raised, Hallahan said. Many helped contribute, including students of Rambam Mesivta High School of Lawrence, who helped raise $326.

The mission of the National Tay-Sachs & Allied Diseases Association (NTSAD) is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.

Hallahan, who walked with Emma at the fundraiser, described the event as a positive, beautiful day and one that was successful. Friends, colleagues, and others attended, offering support for her efforts.

“I was touched,” she said, happy that after weeks of preparation, everything went smoothly. “I appreciate the people that stepped in to do what they could.”

To learn more, visit www.firstgiving.com/christinehallahan.